August 2022
MSRGN Project Directors' Message
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The MSRGN Genetics Summit is a virtual summit to educate, engage, and connect families, providers,
and public health professionals around contemporary topics in genetics.
Our Theme: Momentum in the MOUNTains
will feature 4 topic areas:
M
Medical Diagnosis and Research
O
Outreach and Resources
U
Underserved Populations
N&T
Newborn Screening and Transitions to Adult Medical Services
MSRGN is pleased to present the agenda
for the 2022 Genetics Summit.
We are also excited to announce
Momentum in the...
M - Edwin Oh, PhD, University of Nevada, Las Vegas
Using Genomic Tools to Interrogate Infectious Diseases and Genetic Disorders in Southern Nevada.
O - Laura G. Buckner, M.Ed., LPC, M.O.M., University of Texas at Austin
One-Page Descriptions: Communicate Critical Information in Ways People Will Read and Remember
U - Willow Sheehan, DNP, FNP-C, Shodair Children’s Hospital
Nurse Practitioners in Genetics: Current State and Future Considerations
NT - Jordan Kemere, MD, MS, FACP, Baylor College of Medicine
Practical Tips for Healthcare Transition
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MSRGN premieres our first video in the new series:
Genetics Explained:
Variants of Uncertain Significance (VUS)
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In the spring of 2021, MSRGN surveyed the genetics providers in our region and asked them what genetics topics they would like to have a video about to enhance their "in clinic" explanations to families and individuals of various genetic concepts they describe frequently.
We want to thank our genetic ambassadors, genetic navigators and the genetic professionals in the mountain state region who helped in the review and providing suggestions and feedback for edits and improvements.
The video was released on August 17, 2022 at a genetics pop-up!
You can watch it here on YouTube and please share this link far and wide! If there are any genetic clinics or genetic professionals who would like to use this video or put it on your websites, please feel free to do so! Please send us a link or an email to let us know how you are utilizing or sharing this video! We appreciate you all helping us share this video! | |
Autsim Webinar
Coming up on September 22!
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Autism: What Can Genetics Tell Us?
September 22, 2022
at 11am PT, noon MT, 1pm CT, and 2pm ET
featuring Guest Presenter:
Naomi Meeks, MD
Assistant Professor, Pediatrics
Clinical Genetics and Metabolism
To register please click: here
For a clickable and ready to share PDF version
of this flyer please download: here
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Cross-Pollination
Application Deadline Extended!
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For year 6 of the grant cycle, this NEW funding opportunity is available for ANYONE in the mountain states region (AZ, CO, MT, NV, NM, TX, UT, WY) who has an idea they would like to submit which improves access to genetics services. This funding opportunity will prioritize submissions where individuals from 2 or more of the states in our region are collaborating together on a project...
since the focus is cross-pollination in our region!
The application opened July 1, 2022 and can be found here.
The deadline to submit the application
HAS BEEN EXTENDED UNTIL
October 31, 2022
You do NOT need to be a state team member to apply, however all individuals in our region (including state team members) are encouraged to apply if you have a project idea to improve access to genetics services in MSRGN.
This funding is separate from state team funding, so please utilize the state team funding application for any state team specific project requests first.
| | State Team Accomplishments & Momentum | |
Each month we will be highlighting
the projects and accomplishments of our state teams.
This month we are highlighting:
UTAH
Click here (or on the image above)
to take a closer look at the Utah State Team's accomplishments infographic.
This is a graphical summary of some highlights from Years 4 & 5 of this grant cycle and also what momentum the team is building on for year 6! To learn more about the Utah State Team check out their updated team page here.
If you live in the mountain states and are interested in getting involved in the state team in the state where you live, please reach out to our state teams coordinator, Jamie Stefanski or fill out this form here and note your interest in the state teams in the "Why are you interested in connecting with MSRGN?" box.
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A no-cost MOC 4/MOC 2/CME opportunity
Join our colleagues at Midwest Genetics Network (MGN)
for a new Continuing Education Learning Activity on
Improving Care for
Developmental Disabilities
& Dysmorphic Features
This activity is a multi-state virtual learning collaborative to connect clinicians and their clinic staff interested in improving performance, documentation, and follow-up (including referrals and genetic testing) on screening for developmental disabilities and dysmorphic features in pediatric primary care clinics.
This activity can be finished in 4 months and has been approved for 25-Pediatric MOC4 points, 20-Family Medicine Performance Improvement points, 3.25 - Pediatric or Internal Medicine MOC2 credits and has been approved for a maximum of 3.25 AMA PRA Category 1 Credit™.
There is no charge for participation in this HRSA-funded project.
Live Virtual Learning Collaborative Presentations will take place as follows:
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9/15/22 from 1:00-1:45 pm EST - Developmental Screening at Well Child Visits, 10-35 months by Miriam Behar, MD
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10/5/22 from 1:00-1:45 pm EST - The Pediatric Genetics Evaluation: What to Expect by Sara Zoran, MS, CGC & Jessica A. Scott Schwoerer, MD
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11/3/22 from 1:00-2:00 pm EST - Dysmorphology 101: A Introduction to Dysmorphology by Susan A. Berry, MD
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12/1/22 from 1:00-1:45 pm EST - Introduction to Commonly Recommended Genetic Tests by Sara Zoran, MS, CGC & Jessica A. Scott Schwoerer, MD
Registration opens August 11, 2022 and closes for MOC4/ABFMPI credit on 10/5/22.
Registration will close for CME participation on 12/1/22.
Please visit MGN’s website here for more information.
Please feel free to share information about this learning opportunity with anyone that may be interested in participating in this project!
| | Acknowledgement of Funding | This publication is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $600,000 with 0 percentage financed with nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov. | | The MSRGN Management Team | | |
MSRGN staff contact information: (click on name for email address)
THI staff contact information: (click on name for email address)
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Mountain States Regional Genetics Network
512-279-3910
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