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Grandparent News

MAY 2026

EXPLORE RESOURCES

DISCOVER RESEARCH

GET INVOLVED

MAKE A GIFT

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Grandparent Connect

Thursday, May 28, 2026, at 3:00 PM Eastern​


Grandparent Connect meets the 4th Thursday of every month.


A welcoming space for grandparents of children with JM to learn from one another, share experiences, and stay connected.

2026 Virtual Rare Experience Auction

Get ready — the Cure JM Virtual Auction opens May 23 at 9 AM and runs through May 31 at 9 PM. Explore great items, place your bids, and support JM families. Early registration is simple and ensures you’re ready to bid the moment the auction goes live.

Sydney's Story of Hope

Every JM family has a moment when everything changes. For Sandi and Zack, that moment came when their daughter Sydney suddenly began struggling in ways they couldn’t explain. Their journey to answers was long, unexpected, and full of courage.

Help Reach Our Myositis Awareness Month Goal

We are aiming for a $10,000 goal for Myositis Awareness Month, and the excitement is growing. Grandparents are bringing so much energy to this effort, and every contribution keeps the momentum going.

May 20 Town Hall

The Pediatric to Adult Care Transition with Dr. Ankur Kamdar


This session will help families understand the move from pediatric to adult JM care and how to prepare long before the handoff.


Grandparents are invited to learn what this transition involves and how to support their loved ones. A Q&A with Dr. Kamdar will follow.

Grandparent GEMs

Grandparent GEMs are on a roll — more grandparents are giving monthly and strengthening the research and care families depend on. Want to join them? Details below.

Cure JM kids cutting ribbon at Walk Strong to Cure JM event.

Walk Strong to Cure JM

Small Steps. Big Impact.

Cure JM families and friends come together across the country to take meaningful steps toward better treatments and a cure for juvenile myositis. When we walk together, we celebrate strength, hope, and the power of community.

Family Days

Family Days offer JM families a chance to learn from experts, connect with other families, and feel supported by a caring community. These events include medical updates, family‑to‑family conversations, and time to build relationships that last.


Grandparents are encouraged to join and be part of the day alongside their families.

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IRA Giving

Many grandparents choose a Qualified Charitable Distribution from their IRA because it is both tax‑smart and deeply meaningful. If you are age 70½ or older, you can give directly from your IRA to Cure JM, and the gift will not count as taxable income.

Our new resource page walks you through each step.