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Myositis Awareness Month is here, and it brings an important opportunity to stand with children and families facing juvenile myositis.

Throughout May, Cure JM is working toward a $10,000 goal to help sustain critical research and ensure families continue to have the support they need.

This campaign reflects the heart of our mission. It protects progress, strengthens family programs, and helps keep momentum moving for kids who deserve every chance at a brighter future.

Your involvement makes a real difference. A gift or a simple share helps bring more people into this work and supports the community behind every JM child.

Together, we can fuel what’s next.

Stories of Hope

May 20 Town Hall

 The Pediatric to Adult Care Transition

7pm ET | 6pm CT | 5pm MT | 4pm PT

Join us on Wednesday, May 20th at 7pm Eastern for a Town Hall with Dr. Ankur Kamdar on preparing for the pediatric‑to‑adult care transition. Learn how to build your child’s independence, choose the right adult specialists, and support a smoother handoff when the time comes.

Fatty Acid Supplementation Trial for Dermatomyositis (FAST for DM)

Cure JM is excited to share a new study led by Dr. Lisa Rider at the National Institutes of Health exploring how nutrition may impact inflammation and symptoms in juvenile myositis.

This in-person study focuses on everyday health and well-being and offers families the opportunity to contribute to important research.

Watch April’s Town Hall Replay

April’s Town Hall with Dr. Eli Lebowitz introduced the principles of SPACE (Supportive Parenting for Anxious Childhood Emotions) and how they apply to children living with JM. If you couldn’t attend, the replay is now available to watch and share.

For families who want to go deeper, we’re offering a follow-up session focused on practical tools you can use every day.



Led by a JM parent and trained clinicians, this session will walk through real-life situations and help you build confidence in how you support your child.

When Rare Disease and Anxiety Collide:

How SPACE Can Help

The Town Hall offered hope and practical guidance for families navigating anxiety. This month’s featured Mental and Emotional Health blog builds on that conversation with a deeper look at the SPACE model and how it can support the whole family.

Help Shape Future IVIG Research

We are inviting JM families to share their IVIG experiences in a short survey that will help guide future proposals and improve care for our community. Your insights, whether IVIG is given at home or in the hospital, help us understand what works well and where more support is needed.

Family Days bring Cure JM families together with trusted children’s hospitals for a day of learning, connection, and community. You’ll hear the latest updates in JM research and care and meet families who truly understand the journey. These events offer a welcoming space for children, teens, young adults, and parents to learn, share, and feel supported.

Walk Strong to Cure JM 2026

Small Steps. Big Impact.

Walk Strong events bring Cure JM families together to take meaningful steps toward better treatments and a cure. These walks celebrate strength, hope, and the power of community.

Each event offers food, fun, and connection for children, teens, young adults, and families, reminding every family that they are not alone.



Cure JM hosts a limited number of Walk Strong events each year in select regions. Many families travel to attend the walk closest to them, and we encourage you to join the event that best fits your location.

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